Providence a growing center for study of Alzheimer's
Comparison of a normal aged brain (left) and the brain of a person with Alzheimer's (right). Characteristics that separate the two are pointed out.
From Robert Whitcomb’s “Digital Diary,’’ in GoLocal24.com
With the aging of the U.S. population (and far too many policymakers and others sticking their heads in the sand about its vast social, economic and political implications) it was happy news, especially for our region, that the National Institute on Aging has awarded Brown University and Boston-based Hebrew SeniorLife a $53.4 million grant as part of an effort to improve the health care and quality of life for those living with Alzheimer’s Disease, which affects millions of people. The official count of those Americans suffering from the disease is about 5.8 million (with about 5.6 million 65 or older) but I suspect that’s a big undercount because many victims and their families cover up cases. (And let’s not forget that there are other forms of usually age-related dementias too, such as Frontal-Lobe Dementia and Lewy Body Dementia.)
The award is Brown’s biggest federal grant so far and will further amplify its reputation for advanced work in neuroscience-related matters.
Vincent Mor, a nationally known expert on aging and a Brown professor of health services and policy, told GoLocal:
“This grant will revolutionize the national infrastructure for research into how care is delivered to people living with dementia and their caregivers. The key is figuring out how to take an idea that worked in an ideal situation and adapt it so it can be piloted in the messy real-world system of care providers that exists across the U.S.’’
I hope that the news will lure more researchers to Brown to work on the scary challenges associated with aging.
By the way, there are plenty of local samples available. Rhode Island has the 11th oldest population in America, with 15.84 percent of the population 65 or over. Massachusetts is 25th, with 15.06 percent in that cohort, which may say a little bit about why the Bay State is more economically dynamic than the Ocean State.
To read the GoLocal article, please hit this link.
To see a hauntin movie about treating Alzheimer’s with art, please hit this link.
Auguste Deter in 1902. She had what became known as Alzheimer's Disease, named for Alois Alzheimer, M.D., her physician/psychiatrist, who first described the disease.
Judith Graham: More joint-replacement patients rehabbing at home
Hip- joint replacement.
Older adults and their families often wonder: Where’s the best place to recover after a hip or knee replacement — at home or in a rehabilitation facility? A Brown University-linked study addresses that issue.,
Increasingly, the answer appears to be home if the procedure is elective, friends and family are available to help and someone doesn’t have serious conditions that could lead to complications.
This trend is likely to accelerate as evidence mounts that recuperating at home is a safe alternative and as hospitals alter medical practices in response to changing Medicare policies.
The newest data comes from a March study in JAMA Internal Medicine of 17 million Medicare hospitalizations of people from 2010 to 2016. All the patients were older adults and went home or to a skilled nursing facility after a medical procedure or a serious illness. Knee and hip replacements were the most common reason for these hospitalizations.
People who were sent home with home health care services demonstrated the same level of functional improvement as those who went to a skilled nursing facility (assessments examined their ability to walk and get up and down stairs, among other activities), the study found. And they were no more likely to die 30 days after surgery (a very small percentage in each group). Overall, costs were significantly lower for patients who went home, while hospital readmissions were slightly higher — a possible signal that home health care services needed strengthening or that family caregivers needed better education and training.
“What this study tells us is it’s certainly safe to send people home under many circumstances,” said Dr. Vincent Mor, a professor of health services, policy and practice at Brown University’s School of Public Health who wrote an editorial accompanying the study.
The new report expands on previous research that came to a similar conclusion. In 2017, experts from New York City’s Hospital for Special Surgery published a study that examined 2,400 patients who underwent total knee replacements and were discharged home or to a skilled nursing facility for rehabilitation between May 2007 and February 2011. There were no differences in complication rates at six months or in functional recovery and patient-reported outcomes at two years.
“As a result of these findings, we are encouraging all of our patients to consider home discharge after TKA [total knee replacement],” the authors wrote.
The year before, researchers at New York University reported in JAMA Internal Medicine that from 2009 to 2012 and 2013-14, discharges to rehabilitation facilities fell from 68 to 34 percent for patients undergoing hip and knee replacements, from 71 to 22 percent for patients with cardiac valve replacement surgeries, and from 40 to 30 percent for patients who’d had spinal fusion surgery. Instead, more people were sent home to recover. During this period, NYU Langone Medical Center assumed financial responsibility for “episodes of care” for joint replacements that include the post-hospital recovery period — a policy that Medicare is now promoting.
Diane Rubin, 67, who lives on Long Island, had a hip replacement at the NYU medical center in January. Before the surgery, she got a list of things she’d need to do to prepare for her recovery; afterward, a nurse and physical therapist visited her at home regularly for about three weeks. “I was more comfortable recuperating at home and I’ve had absolutely no complications,” she said.
How do physicians decide where to send patients? “In general, we tend to send patients to skilled nursing facilities who are older, sicker, more deconditioned after surgery, and who have no spouse or caregiver, fewer resources and little social support,” said Dr. Leora Horwitz, a co-author of that study and associate professor of population health and medicine at New York University School of Medicine.
Though it’s widely believed that people who live alone might not do well going home, last year researchers at The Rothman Orthopaedic Institute at Thomas Jefferson University in Philadelphia published research showing that isn’t necessarily the case. At their institution, patients are assigned a nurse navigator who provides assistance before and after hip or knee replacements. Patients who lived alone stayed in the hospital longer and received more home health care services than those who lived with others.
When they recuperated at home, the Rothman Orthopaedics patients didn’t have higher rates of medical complications, returns to the hospital or emergency room visits than those who went to rehabilitation facilities. Nearly 90 percent of people who lived alone said they’d again choose a home discharge.
Dr. William Hozack, a co-author of the study and professor of orthopedic surgery at Thomas Jefferson University Medical School, acknowledged that patients who go to rehabilitation are probably sicker and more debilitated than those who go home, potentially biasing research results. Still, practices have changed considerably. Today, he and his colleagues send 95 percent of patients who get hip and knee replacements home to recover, instead of directing them to institutions.
People shouldn’t underestimate how much help they may require at home, especially in the first few weeks after surgery, said Carol Levine, director of the United Hospital Fund’s families and health care project, who has had two hip replacements. The potential downsides to going home include a greater burden on caregivers and the possibility that complications won’t be identified as quickly, needs will go unmet if friends and family can’t pitch in, and people won’t follow through on recommended rehabilitation regimens. And outcomes may not be as favorable if services that support people at home aren’t readily available
Utah’s Intermountain Healthcare, a health system that operates 23 hospitals and nearly 170 medical clinics, is bringing an array of services — palliative care, dialysis, primary care and hospital care — into the home through its new Intermountain at Home program. Recovering at home after a hospital procedure is also a focus, and Intermountain has created standardized procedures for hip and knee replacements over the past few years, according to Rajesh Shrestha, the system’s chief operating officer of community-based care.
Every joint-replacement patient going home after surgery now gets a thorough assessment to determine the resources that are needed. A care plan is created and a case manager, usually a registered nurse, makes sure that physical therapy, durable medical equipment and home health care are supplied. The case manager also coordinates postoperative care with orthopedic surgeons and makes sure that patients reconnect post-surgery with their primary care physicians. And a team of providers is available 24/7.
During the past few years, discharges to rehabilitation facilities have declined by half at most of Intermountain’s Utah facilities, with no notable increase in complications or hospital readmissions, Shrestha said. During 2018, 85 percent of knee replacement patients and 88 percent of hip replacement patients went home after surgery, respectively.
At Kaiser Permanente, a health plan with more than 12 million members, a substantial number of patients who get elective hip and knee replacements are skipping a hospital stay altogether and going home the same day. In Kaiser’s Southern California region, same-day joint replacement home discharges now total about 50 percent, according to Dr. Nithin Reddy, who oversees joint replacements for the region. (Kaiser Health News is not affiliated with Kaiser Permanente.)
Kaiser Permanente has made this possible by changing how procedures are done (an anterior approach for hip replacements, for example), introducing new protocols for pain management (opioids are used less frequently), altering anesthesia protocols (less general anesthesia and more regional anesthesia), reducing blood transfusions and hiring “total joint coordinators” (typically nurses) to help with the transition from the hospital to home. All patients go home with home health care, receive two outreach calls the week after surgery and get comprehensive handbooks with checklists of what to do before and after surgery and common concerns to look out for.
“We have very robust discharge criteria: Patients have to have well-managed pain and be able to get in and out of bed by themselves and in and out of the restroom by themselves. And they need to be able to walk 50 to 75 feet unassisted, using a walker,” Reddy said. “If they can’t do those things, they aren’t safe for a home discharge and [rehabilitation at] a skilled nursing facility would come into play.”
Magdalena Ritayik, 66, one of the doctor’s patients, had a knee replacement last September after cortisone shots stopped working and pain became a constant companion. Six years before, her husband had both knees replaced, separately, and stayed in the hospital three days each time. By contrast, Ritayik went home the afternoon after her surgery, only to find a nurse and physical therapist waiting there for her.
“The nurse went over all the medications, when to take them and how much. The physical therapist showed me how to do bending and stretching with a chair in the living room and to raise [my leg] while I was lying on the bed,” Ritayik said. “The first week you have to stay home. After the second week, I was walking almost like regular. A month after the surgery, I was at full extension and full bending.”
We’re eager to hear from readers about questions you’d like answered, problems you’ve been having with your care and advice you need in dealing with the health care system. Visit khn.org/columnists to submit your requests or tips.
Judith Graham is a Kaiser Health News reporter.
Judith Graham: @judith_graham